2019 RIDE PROGRAM
Sunday, September 22, 2019
Longfellow Tennis and Health Club
Wayland, MA

The great grandmother (and first) of all bike ride fund raising events in the country...maybe even the world, for the ALS cause!
12:15 PM –
John Hedstrom, MA Chapter ALS Association E.D.:
"Welcome to the 2019 Ride to Defeat ALS – and it’s the 25th anniversary of the ride! It’s great to see so many people gathered here today to raise awareness, for ALS, and to raise funds to support our cutting-edge research, vital patient care services and critical advocacy work at both the state and federal levels."
John introduces Cindy Fitzgibbon
"Back for her 3rd year as our Emcee is Cindy Fitzgibbon of NewsCenter 5's EyeOpener and Midday Meteorologist. Fitzgibbon is active in the Natick community where she lives with her husband and two boys.
It is my pleasure to introduce Cindy Fitzgibbon, Channel 5 Meteorologist, who will serve as our MC today."
Cindy Fitzgibbon:
"We’re not only here to show our support for those with ALS and their families, but we’re also here to raise essential funds that help the ALS Association provide support and services right here in the Massachusetts. Your fundraising dollars support things like home visits for newly diagnosed patients, support groups, insurance and benefits counseling, medical equipment loaners and funding the Curt and Shonda Shilling Certified Treatment Center of Excellence in Burlington."
"Last year, we introduced a new program called our Quality of Life Grants program. Grants of $500 per patient are awarded for items such as generators, DME Repairs, personal emergency response systems, hospital beds and transportation. With this program, we have been able to assist more than 40 families, to offset some of the extreme cost of care. We have seen the importance of giving support to children who have a loved one affected by ALS with our involvement for the past 4 years with the Hope Loves Company camp. To continue the outreach of support for kids, we have added a Y Cares Program to our fall symposium which will provide them with education about ALS. Our Technology Integration Specialist, Elisabeth Dolloff has increased the technology and communication program for the chapter exponentially. We have more communication devices and equipment than ever, and she has worked diligently this past year to help set up a program to provide specialized equipment and resources for those with ALS to be able to do voice banking, which allows them to have their own voice linked to technology."
"These are real-life services which help our neighbors, friends, and family and they would not be possible without your help. Thank you to all of you who raised funds for today’s Ride!"
"We would now like to take a moment to personally recognize today’s top fundraisers and top teams. A huge thank you to each and every one of you for your dedication and extraordinary efforts to help us further our mission!"
Special Events Coordinator Ashley Corbin presents awards as Cindy reads the names.
"Top Fundraiser: Geoff Marchant
If the team captain for the following teams could come forward and collect the prizes for your team:
Top Fundraising Team: Team Hope
Rookie Team of the Year: Team Hope OR Johnny’s Reply TBD
Most Spirted Team: AppleFriends4ALS
Congratulations! Give yourself a much-deserved round of applause!"
"The Massachusetts Chapter staff is made up of a group of dedicated people who worked tirelessly, and show tremendous commitment to the advancement of the mission of The ALS Association."
"Let’s meet the staff. Please wave when I introduce you:
John Hedstrom, Executive Director
David Bodah, Deputy Executive Director
Ashley Vellante, Special Events Manager
Loretta Lane, Communications and Advocacy Manager
Shannon Sullivan, Care Services Manager
Eileen Garry, Care Services Coordinator
John Adebayo, Care Services Coordinator
Elisabeth Dolloff- Speech and Language Pathologist and AAC Specialist
Heidi Henderson, Finance Manager
And last but not least…the person responsible for organizing this spectacular event -
Ashley Corbin, Special Events Manager"
"We are grateful to the many businesses that have supported our ride this year by becoming a corporate sponsor."
"A huge thank you to our 2019 Corporate Sponsors Victory HVAC, Village Bank, AASP-MA, Environmental Chemical, The Longfellow Health Club and Franks Spoke N Wheel. Our Ride Route Sponsors and Partners: Zarb Corporation, Accurate Graphics, High5Em, Castle Island Brewery, Mobility Works, Assabet River Bicycles, Atkinson Pool, Cultivate Care Farm, and Lincoln Sudbury High School."
"Special thanks to our lunch sponsors: Blue Ribbon BBQ, Jose’s Mexican Restaurant, and Crosby Marketplace.
We would also like to thank our in-kind sponsors for their generous donations to the event.
A couple of housekeeping reminders, - be sure to stop by the Tribute Wall to add a note or photo to share why you rode today. Also, if you haven’t already done so, make you sure you get a Ride Team picture with our excellent professional photographer, Jarvis Chen. Jarvis give a wave so people know who you are!"
Cindy introduces Patient Speaker Doug McIlavaine
"Our next speaker is here with his new ride team, Team Hope, who have been a huge part of the ride this year. He was diagnosed with ALS earlier this year and is here today to share his story with you. Please join me in welcoming Doug McIlavaine."
Doug shares his story. (5 minutes)
Back to Cindy
"Thank you Doug for your courage and sharing your story with us."
"A special recognition today is to a couple of important people, who without them, there would not be a Ride to Defeat ALS. Paul Tamburello started the ride 25 years ago, and teamed up with Myke Farricker in 2002. Their original “Positive Spin for ALS” was the first bikeathon in the country dedicated to raising money for research and services for those with ALS. Myke graciously hosts us every year here at the Longfellow Health Club and goes above and beyond to support the event. We would like to invite both of them up here, and Paul is going to share some important history of the Ride."
Paul Tamburello speaks:
"Welcome to the great grandmother of all ALS Fund Raising Bike Rides…!
Every one of us here today has someone riding on our shoulders.
They’re our Honorary Riders, with us in spirit or in person."
"A little history: In my appeal letters before my solo rides from Plymouth Rock to Provincetown, I included an insert with a return envelope that said, “I will place the names of all contributors in my bike bag when I wheel to Provincetown. Whether you wish to contribute or not, if you know the names of any ALS patients, past or present, whom you want to “ride” with me, please send their names to me. I will be honored with their company.”
Every name got packed into my bike bag on the handlebars. To commemorate and to celebrate the spirit of the Honorary Riders, Myke Farricker, Susan Lyman of Provincetown, and I stood on the jetty at the end of Route 6A to read the names of those men and women in what we called a “Roll Call of Honorary Riders.”
Names matter.
We’re about to reintroduce that powerful tradition today. In the words of a musician friend, “We’re calling down the spirit.”
Before we begin, I have to tell you one story. Scrawled on the insert returned to me before the 1999 Positive Spin for ALS was this note…”Bring Sally for the ride, she’d love it. Smoking Section, though. TEE HEE” in caps.
I called the sender and told him that until this year my bike bag had been a “Smoke Free” zone, but after receiving his letter, I opened a Smoking Section and sat his mom, “Smokin’ Sally,” smack in the middle of it. We both laughed at the image. I’m sure everyone in this crowd knows living with ALS doesn’t mean living without laughter. Honorary riders, get ready!"
Myke Farricker (co-owner of The Longfellow Club) and Paul read the names. See list below...We thank each of you riders for being here today, and for riding in honor of your loved ones.
Back to Cindy
"We now have a few special awards we would like to present to some teams who have been an extensive part of our Ride.
Could we have a team captain from each of the following teams: Inker’s/Cathy’s Team, Spirit Team, George’s Team and Team Roy. You are being recognized today for your annual participation in the ride for 10 plus years!
Could we also have a team captain from each of the following teams: Boston Aussie’s, Dave Z’s Antiques, Hudson Outbacks, Team BuLL, Team Beson, Mitch’s Marauders, Shelley’s Heroes and Team Mrs. B – all of you have been part of the ride for 5 plus years. Let’s give a huge round of applause to these teams for their amazing dedication!
Now let’s celebrate all that has been accomplished here today and for the past 25 years – enjoy your lunch and stick around for the band!"
Note: DJ Mr. Jonathan was busy spinning upbeat music all morning long as teams assembled, rode, and returned to The Longfellow Club in Wayland. The band Devri treated the crowd to more upbeat music when the speaking program ended. Lots of positive energy all day long.
HONORARY RIDERS

Don Lemon: Anchor, Bridge
June 22, 2020
Don Lemon: CNN Anchor, Bridge
Don Lemon is paving the way every night to expand the conversation about racism in America. He is thoughtful, presents his authentic self every night, and differentiates his opinions from the news clearly.
He’s deceptively good at tackling the heretofore third-rail subject of racism, touchy to explore even with a CNN audience. Low key before the George Floyd murder, he registers the event with sense of the now, recognizing that this is the time to open up the talk and that he is going to use his platform to do it.
I can think of no other highly visible black man in the media constellation who has the credibility, sensibility, and a smoldering repugnance at a nearly profane sense of systemic racial injustice regarding black men in particular.
George Floyd's murder in plain daylight, captured on video, lit a fuse in the national psyche. Lemon lets it burn. But in a way that he intends, figuratively speaking, to cause as much imploding as exploding. When white folks begin to notice then come to grips with entitlement and privilege that comes with their skin color and begin to notice it without feeling called out that’s quite a feat.
Lemon is doing that. When he launched a podcast titled "Silence Is Not An Option," he put his words into action.
Excerpt from "Silence Is Not An Option"
I know that this issue, like this country, isn't just black and white — we're all impacted by this, and we all have work to do. Listening to this podcast won't wash away your sins, and you won't get a certificate at the end. You may still say the wrong thing — hell, I am sure at some point I'm gonna say the wrong thing — but silence is not an option. We've got to talk about this and find some concrete steps forward, together.
The stone he’s cast into the pool of race consciousness is making a ripple on shores heretofore unlapped . A news anchor, yes. And a bridge to a national consciousness about race.
June 25, 2020 in Commentaries | Permalink | Comments (22)